VHL Family Alliance News


News items related to VHL Family Alliance as issued by the Send2Press Newswire service on behalf of the noted news source.


Written by Parents, Drawn by the Kids, VHL Family Alliance Announces the First Guide for Kids Dealing with Hereditary Cancer Syndromes: The VHL Handbook Kids’ Edition

BOSTON, Mass., June 1 (SEND2PRESS NEWSWIRE) — The VHL Family Alliance (VHLFA) announced today that the very first ‘VHL Handbook Kids’ Edition’ (ISBN: 978-1-929539-02-4) is now available at Amazon.com. The book was written and reviewed by a team of parents and professionals and illustrated with charming drawings and photographs from children with VHL, their siblings and friends. (VNR – Video News Release)

VHL Family Alliance Announces Free Awareness Benefit Concert in Boston Common

BOSTON, Mass., May 1 (SEND2PRESS NEWSWIRE) — This year VHL Family Alliance will be hosting its first annual special event in honor of International VHL Day, which will be declared in Massachusetts in May at the State House. Alex Anderson, a 13 year old boy from New Jersey, started this concept when he had a vision of hosting a worldwide fundraiser for VHL. Alex has already had a tumor in his ear at age four and four tumors in his retina, all resulting from his struggle with VHL.