VHL Family Alliance Kicks off May Awareness Month, Announcing 8 Events Coast to Coast

BOSTON, Mass., May 1 (SEND2PRESS NEWSWIRE) — A neoburlesque sci-fi play in Providence, a Crabfest in Maryland, a music festival on Boston Common – all to support the VHL Family Alliance (VHLFA) in its fight to get attention for its rare disease population. Thirteen year old Alex Anderson from New Jersey formed the idea of a worldwide fundraiser to benefit the VHLFA. The VHLFA announced today the beginning of a month long celebration highlighted by International VHL Day, May 9th to spread awareness for von Hippel-Lindau disease (VHL).